sformanMar 203 minAdding Siblings to a Family with A Deletion DiagnosisThe Decision Olivia was our firstborn. I know that each family has different scenarios in which their affected child may be firstborn,...
Ashley Collins RoyJan 304 minCharting a New Path: Navigating Life After a Genetic Deletion Diagnosis with Liv4TheCureA new year is often a defining moment or a catalyst for a major life change. It has significance in how our lives are marked and...
Diana Vaca McGhieDec 28, 20232 minMake A WishDuring this holiday season, most of us will spend time gift-giving and sharing delicious feasts with family and friends. These priceless...
Aaron FormanOct 2, 20235 minA Parent Perspective on Chromosomal Deletion Syndrome vs. DiseaseReceiving a genetic abnormality diagnosis for your child you will soon see that the entire medical field is in uncharted territory.
sformanJan 8, 20203 minLive your passions Back in March of 2018 I was itching... itching for the opportunity to connect with people. I had spent the last year and a half adjusting...
sformanOct 21, 20192 minHOPE Hope can be defined as: "A feeling of expectation and desire for a certain thing to happen." Hope is the driving force that propels us...