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Erin Whiteley

Aug 13
2 min

Nanny Care and Support: A Parent's Ally in Chromosomal Deletion Syndrome

Nancy Hellman

Jun 17
3 min

A Physical Therapist Perspective on Wolf-Hirschhorn Syndrome

sforman

Mar 20
3 min

Adding Siblings to a Family with A Deletion Diagnosis

Ashley Collins Roy

Jan 30
4 min

Charting a New Path: Navigating Life After a Genetic Deletion Diagnosis with Liv4TheCure

Diana Vaca McGhie

Dec 28, 2023
2 min

Make A Wish

Aaron Forman

Oct 2, 2023
5 min

A Parent Perspective on Chromosomal Deletion Syndrome vs. Disease

sforman

Jan 8, 2020
3 min

Live your passions

sforman

Oct 21, 2019
2 min

HOPE

sforman

Oct 9, 2019
2 min

"Slow down and listen"

sforman

Aug 23, 2019
3 min

Grief

sforman

May 11, 2019
2 min

Hiking for WHS

sforman

Apr 8, 2019
2 min

Let's talk school

sforman

Mar 22, 2019
2 min

Consistency with Inconsistency

sforman

Jan 25, 2019
1 min

It just scares me…

sforman

Jan 14, 2019
2 min

Sensory Overload

sforman

Dec 31, 2018
1 min

Worries...

sforman

Dec 26, 2018
2 min

I could lay here forever…

sforman

Dec 17, 2018
1 min

Tiny little fingers….

sforman

Dec 10, 2018
4 min

It's not an easy road

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