Blog | Our Mission

Erin Whiteley

Aug 13, 20242 min read

Nanny Care and Support: A Parent's Ally in Chromosomal Deletion Syndrome

Nancy Hellman

Jun 17, 20243 min read

A Physical Therapist Perspective on Wolf-Hirschhorn Syndrome

sforman

Mar 20, 20243 min read

Adding Siblings to a Family with A Deletion Diagnosis

Ashley Collins Roy

Jan 30, 20244 min read

Charting a New Path: Navigating Life After a Genetic Deletion Diagnosis with Liv4TheCure

Diana Vaca McGhie

Dec 28, 20232 min read

Make A Wish

Aaron Forman

Oct 2, 20235 min read

A Parent Perspective on Chromosomal Deletion Syndrome vs. Disease

sforman

Jan 8, 20203 min read

Live your passions

sforman

Oct 21, 20192 min read

HOPE

sforman

Oct 9, 20192 min read

"Slow down and listen"

sforman

Aug 23, 20193 min read

Grief

sforman

May 11, 20192 min read

Hiking for WHS

sforman

Apr 8, 20192 min read

Let's talk school

sforman

Mar 22, 20192 min read

Consistency with Inconsistency

sforman

Jan 25, 20191 min read

It just scares me…

sforman

Jan 14, 20192 min read

Sensory Overload

sforman

Dec 31, 20181 min read

Worries...

sforman

Dec 26, 20182 min read

I could lay here forever…

sforman

Dec 17, 20181 min read

Tiny little fingers….

sforman

Dec 10, 20184 min read

Nanny Care and Support: A Parent's Ally in Chromosomal Deletion Syndrome

A Physical Therapist Perspective on Wolf-Hirschhorn Syndrome

Adding Siblings to a Family with A Deletion Diagnosis

Charting a New Path: Navigating Life After a Genetic Deletion Diagnosis with Liv4TheCure

Make A Wish

A Parent Perspective on Chromosomal Deletion Syndrome vs. Disease

Live your passions

HOPE

"Slow down and listen"

Grief

Hiking for WHS

Let's talk school

Consistency with Inconsistency

It just scares me…

Sensory Overload

Worries...

I could lay here forever…

Tiny little fingers….

It's not an easy road