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Nanny Care and Support: A Parent's Ally in Chromosomal Deletion Syndrome
Caring for a child with chromosomal deletion syndrome can be challenging, but it's also incredibly rewarding.
Erin Whiteley
Aug 13, 20242 min read
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A Physical Therapist Perspective on Wolf-Hirschhorn Syndrome
Olivia's Journey Her name is Olivia. Initially a new referral, she now resides permanently in my heart. No, I am not her parent,...
Nancy Hellman
Jun 17, 20243 min read
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Adding Siblings to a Family with A Deletion Diagnosis
The Decision Olivia was our firstborn. I know that each family has different scenarios in which their affected child may be firstborn,...
sforman
Mar 20, 20243 min read
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Charting a New Path: Navigating Life After a Genetic Deletion Diagnosis with Liv4TheCure
A new year is often a defining moment or a catalyst for a major life change. It has significance in how our lives are marked and...
Ashley Collins Roy
Jan 30, 20244 min read
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Make A Wish
During this holiday season, most of us will spend time gift-giving and sharing delicious feasts with family and friends. These priceless...
Diana Vaca McGhie
Dec 28, 20232 min read
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A Parent Perspective on Chromosomal Deletion Syndrome vs. Disease
Receiving a genetic abnormality diagnosis for your child you will soon see that the entire medical field is in uncharted territory.
Aaron Forman
Oct 2, 20235 min read
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