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UPCOMING EVENTS

The 5th Annual "The Smitty" Golf Tournament​

What: Golf Tournament honoring the life and legacy of Jim “Smitty” Smith.  Tournament proceeds to benefit St. Jude, Liv4TheCure, WNY Perinatal Bereavement Group & Godwinks.

Where: Willowbrook Golf Course, 4200 Lake Ave, Lockport, NY 14094

When: Saturday, June 6, 2023

11:30am – Check-In

12pm – Lunch

1pm – Shotgun Start

6 pm – Open Bar/Dinner/More Open Bar

Cost: $150/person or $600/foursome.  Registration ends Saturday, May 30, 2026. 

Registration Information: Nathan Weld @585.735.5003.

Donations: Jessica Smith @716.799.3534

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The Children of Wolf Hirschhorn Syndrome Book​
For all of our WHS families...
We are writing a book about our children and their stories.  Each chapter of the book will be dedicated to a different child.  Take out your pens, computers or voice recorders and record your story.  Send it to liv4thecure@gmail.com or contact me for more information.  The books proceeds will go 100% to Liv4theCure and research initiatives.
Desk with notebook and laptop

PAST EVENT PHOTOS

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