top of page
UPCOMING EVENTS
The 5th Annual "The Smitty" Golf Tournament
What: Golf Tournament honoring the life and legacy of Jim “Smitty” Smith. Tournament proceeds to benefit St. Jude, Liv4TheCure, WNY Perinatal Bereavement Group & Godwinks.
Where: Willowbrook Golf Course, 4200 Lake Ave, Lockport, NY 14094
When: Saturday, June 6, 2023
11:30am – Check-In
12pm – Lunch
1pm – Shotgun Start
6 pm – Open Bar/Dinner/More Open Bar
Cost: $150/person or $600/foursome. Registration ends Saturday, May 30, 2026.
Registration Information: Nathan Weld @585.735.5003.
Donations: Jessica Smith @716.799.3534

The Children of Wolf Hirschhorn Syndrome Book
For all of our WHS families...
We are writing a book about our children and their stories. Each chapter of the book will be dedicated to a different child. Take out your pens, computers or voice recorders and record your story. Send it to liv4thecure@gmail.com or contact me for more information. The books proceeds will go 100% to Liv4theCure and research initiatives.

PAST EVENT PHOTOS

bottom of page
























