ADVANCING SCIENCE & TECHNOLOGY FOR

RARE CHROMOSOMAL DELETION SYNDROMES

MORE ABOUT OUR MISSION & OUR NAME

Liv4TheCure's mission is to advance science and techology for rare chromosomal deletion syndromes (with a special focus on Wolf Hirschhorn Syndrome –read Our Story for why).

What is a Rare Disease?

A rare disease is a disease that affects less than 200,000 people at any given time.  Rare diseases affect 25-30 million Americans. 

Our goal is to bring awareness to rare diseases, specifically Wolf Hirschhorn Syndrome which is a genetic deletion on the 4th chromosome that affects children in highly varied ways.  All funds will go to research, specifically gene therapy and replacement for the missing areas of the 4th chromosome that have been deleted.

Liv4TheCure wants to fund the creation of a new platform technology such as CRISPR that will not only help children with WHS but any child with a genetic deletion.

support the cure

Your donations fund research for

chromosomal deletion syndromes

Photo collage of children with rare diseases
Photo collage of children with rare diseases

PARTNERS

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Rare Foundation Alliance Member
Rare Epilepsy Network
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researchmatch.org
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