ADVANCING SCIENCE & TECHNOLOGY FOR
RARE CHROMOSOMAL DELETION SYNDROMES
Read Our Latest Blog: Navigating Life After a Genetic Deletion Diagnosis
MORE ABOUT OUR MISSION & OUR NAME
Liv4TheCure's mission is to advance science and technology for rare chromosomal deletion syndromes (with a special focus on Wolf Hirschhorn Syndrome –read Our Story for why).
What is a Rare Disease?
A rare disease is a disease that affects less than 200,000 people at any given time. Rare diseases affect 25-30 million Americans.
Our goal is to bring awareness to rare diseases, specifically Wolf Hirschhorn Syndrome which is a genetic deletion on the 4th chromosome that affects children in highly varied ways. All funds will go to research, specifically gene therapy and replacement for the missing areas of the 4th chromosome that have been deleted.
Liv4TheCure wants to fund the creation of a new platform technology such as CRISPR that will not only help children with WHS but any child with a genetic deletion.